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Stephanie Michelle Snow
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Obituary for Stephanie Michelle Snow

“Your life was a blessing, your memory a treasure; you are loved beyond words and missed beyond measure.” – Unknown
Stephanie Michelle Snow, age 26, received her angel wings after a courageous battle with Fibrodysplasia Ossificans Progressiva (FOP) and Propriospinal Myoclonus on January 2, 2018. Stephanie was born on March 8th 1991 in Santa Maria, California. She attended Alice Shaw Elementary School, Lakeview Jr. High, Righetti High School and Allan Hancock College.
Stephanie was diagnosed with FOP at the age of three. After her diagnosis, the Central Coast community rallied around her to support the annual grassroots efforts of the “Find-A-Cure” fundraising events to support research to find a treatment and cure for FOP. Stephanie spread awareness on the rare condition by appearing in many news features, including the international announcement of the FOP gene finding in 2006. After this discovery, Stephanie’s motto became “Hope is Alive”, which she lived by each day.
FOP was the condition that Stephanie had, but is not what defined who Stephanie was. Despite her medical condition, Stephanie lived life to the fullest being involved in a variety of activities from youth football cheerleading, 4-H, and FFA. As her condition progressed, Stephanie enjoyed raising abandoned kittens and fostering animals in need. She also enjoyed spending time camping, being a part of SB County Fair livestock activities and going to a NASCAR or Santa Maria Speedway race.
Stephanie is survived by her parents, Bob and Jennifer Snow, sister, Ashley Snow Bognuda and brother -in-law, Dylan Bognuda. Her spirit also lives on through her family, friends, care providers and medical community that played a very important role in her life.
A Memorial service will be held on Sunday, January 21st @ 1 p.m. at Santa Maria Elks Lodge #1538,
1309 N. Bradley Road, Santa Maria, CA

In lieu of flowers, donations can be made to the Stephanie Snow Memorial Fund through GoFundMe or Community Bank of Santa Maria. This fund is solely for the purpose of honoring Stephanie’s passion for the welfare of animals through a specific memorial project, where tax-deductible donations go directly to the Santa Maria Valley Humane Society.


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